News
Law now allows those with rare diseases to be paid for clinical trials, keep SSI benefits
The “Improving Access to Clinical Trials Act” (IACT) went into affect on April 3.
This new law allows those with rare diseases who receive Supplemental Security Income (SSI) to accept up to $2,000 in compensation for participating in a clinical drug trial without becoming ineligible for federal medical benefits.
The Alpha-1 Foundation joined many organizations representing those with rare diseases in lobbying for the new law, which passed Congress and was signed into law in 2010.
