News
Alpha-1 Research Registry director to discuss latest research updates at Charleston, SC education day
CHARLESTON, South Carolina— Your opportunity to become more informed about Alpha-1 is here! On Saturday, Nov. 5, the Alpha-1 Foundation and the Alpha-1 Association are co-hosting an Alpha-1 education day.
This event is a one-day meeting where Alphas, friends and family can learn about Alpha-1 programs and attend a variety of presentations.
Charlie Strange, MD, will be giving a presentation on Alpha-1 research updates and Alpha-1 lung and liver disease. Strange is the director of the Alpha-1 Foundation Research Registry. Mike Graves, the Research Registry coordinator, will also be speaking.
Charlie Strange, MD, Director of the Alpha-1 Research Registry
Respiratory therapist Marilyn Henderson, BA, RRT, RPFT, will talk about detection in the pulmonary lab and Ashley Sisson, MED, RN, will explain the importance of pulmonary rehabilitation. A discussion on genetic counseling programs will be given by Dawn McGee, MS, CGC.
Other speakers include Angela McBride, director of development for the Alpha-1 Foundation and Marlene Erven, executive director of the Alpha-1 Association.
A free patient dinner will be held at 6:30 pm Friday, Nov. 4.
The event will be held at the Wild Dunes Resort, 4600 Boulevard, Isle of Palms, SC 29451, phone 888-778-1876.
You can register here.
For further information, contact the Alpha-1 Association at 1-800-521-3025.
Education days are funded by unrestricted grants from AlphaNet, Baxter, Centric Health Resources, CSL Behring and Talecris Biotherapeutics, Center for Science and Education.
