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Alphas and Alpha-1 carriers, now's the chance to be heard; survey asks opinions on programs, access to medical care

Alphas and Alpha-1 carriers across the United States are invited to answer a survey on Alpha-1 Antitrypsin Deficiency and the needs of the Alpha-1 community. The survey, a joint project of the Alpha-1 Foundation and Alpha-1 Association, asks for opinions on our programs and any unfilled needs. The survey will help both agencies to understand if Alphas are having problems accessing medical care, and also help us advocate for Alphas.

The deadline for the survey has been extended to Thursday, Feb. 3. You can take the survey here:

Online Survey

The survey can be completed either online or, by request, a paper survey will be mailed to you. For questions about the Alpha-1 community survey, contact Linda Rodriguez at lrodriguez@alpha-1foundation.org or 1-888-825-7421, Ext. 217.