News
Nevada woman's Alpha-1 family tree wins the Foundation's Alpha-1 art contest for Facebook friends
Posted: Thursday September 2, 2010 under News Announcements
Amber Albanese is no stranger to Alpha-1.
NIH plans conference on clinical research for rare diseases
Posted: Wednesday September 1, 2010 under News Announcements
BETHESDA, MD—A conference on clinical research for rare diseases will be held at the National Center for Research Resources at the National Institutes of Health (NIH) Sept. 21.
Viewoint: Lowering the Cost of Healthcare From the Patient’s Perspective
Posted: Tuesday August 31, 2010 under News Announcements
Myrl Weinbeg, president of the National Health Council, has written an article on lowering the cost of healthcare from the patient’s viewpoint in The American Journal of Pharmacy Benefits.
112 from Alpha-1 liver community join teleconference to hear plans for Foundation's new Liver Initiative
Posted: Tuesday August 31, 2010 under News Announcements
A total of 112 people joined a teleconference call Wednesday evening to hear about the Foundation’s new Liver Initiative. They called in from Maine to California, Florida to Canada, and just about everywhere in between.
Website provides explanations, answers common questions on Genetic Information Nondiscrimination Act
Posted: Tuesday August 31, 2010 under News Announcements
A new website provides an introduction to the Genetic Information Nondiscrimination Act (GINA) and its protections for health insurance and employment.
FDA asks Baxter to stop distributing Aralast NP brochure to physicians
Posted: Tuesday August 31, 2010 under News Announcements
The US Food and Drug Administration has warned Baxter International Inc. against including what the agency called “misleading statements” in a physicians’ brochure for Aralast NP, an augmentation therapy for Alpha-1 Antitrypsin Deficiency.
UK researchers use reprogrammed adult skin cells to make stem cells that model genetic diseases
Posted: Thursday August 26, 2010 under News Announcements
Researchers at the University of Cambridge, UK, have reported that human induced pluripotent stem (iPS) cells can be used to model a range of inherited diseases such as liver disease from Alpha-1 Antitrypsin Deficiency.
Kamada CEO says agreement with Baxter on Alpha-1 augmentation product will help make company profitable
Posted: Wednesday August 25, 2010 under News Announcements
Globes
“We’re very pleased by the collaboration, and we think that this deal will be good for all the parties, most of all for the patients,” Kamada Ltd. CEO David Tsur told the Israeli business journal Globes after signing a strategic agreement with Baxter International.
NIH withholding $54 million in grants after judge's ruling halts US funding for embryonic stem cell research
Posted: Tuesday August 24, 2010 under News Announcements
Bloomberg.com
About 35 percent of the $200 million the U.S. government planned to award this year in grants for embryonic stem cell research won’t be distributed after a judge’s ruling banned the funding.
World Spirometry Day is Oct. 14, part of Year of the Lung celebration
Posted: Tuesday August 24, 2010 under News Press Releases
COPD Foundation
The Federation of International Respiratory Societies have declared Oct. 14 World Spirometry Day to celebrate lung health during the Year of the Lung.
