Healthcare Providers
Publications
The Alpha-1 Foundation offers a variety of educational brochures to provide current information on Alpha-1 to the general public and to medical professionals.
Alpha-1: A free magazine that provides practical advice, personal experiences, and pertinent news for people touched by Alpha-1. Order it here
What is Alpha-1 Antitrypsin Deficiency?: This brochure provides basic information about Alpha-1, signs & symptoms and testing methods.
The Liver and Alpha-1: Informational brochure aimed at explaining liver disease as it relates to Alpha-1.
Healthcare Provider’s Guide: Information for clinicians about Alpha-1 testing, diagnosis and treatment.
Guide for the Recently Diagnosed Individual: Information pertaining to the condition, health management, and treatments available to individuals diagnosed with Alpha-1.
What Does It Mean to be an Alpha-1 Carrier?: This brochure contains information about the condition, symptoms that may arise and preventive measures to follow for individuals diagnosed as Alpha-1 Carriers.
The Alpha -1 Research Registry Questionnaire: This brochure provides information and an application for enrollment for Alphas and Alpha-1 Carriers into a confidential database which may provide an opportunity to participate in clinical trials/surveys and gain access to experts in Alpha-1 clinical care.
Family Linkage in the Alpha-1 Research Registry: An informational pamphlet explaining the importance of enrolling Alphas and other diagnosed family members into the Research Registry allowing researchers to study genes that influence the development of Alpha-1 in families.
The Alpha-1 Coded Testing (ACT) Study: A brochure explaining the research study that investigates individual thoughts and feelings about the risks and benefits associated with learning genetic information through a confidential at home test.
Alpha-1 DNA & Tissue Bank: An informational pamphlet that encourages individuals to enroll into the DNA & Tissue Bank for the purpose of advancing scientific knowledge in Alpha-1 Antitrypsin Deficiency and other lung and liver diseases.
Taking Part in Alpha-1 Research: This brochure explains the importance of research studies and promotes enrollment in order to find better treatments and, eventually, a cure.
Issues in End-of-Life Care: A pamphlet that outlines options for individuals who no longer respond to curative care and need supportive care.
ATS/ERS Standards for the Diagnosis & Management of Individuals with Alpha-1 Antitrypsin Deficiency: Scientific evidence emphasizing the importance of genetic testing, diagnosis, management and treatment for Alpha-1. View the ATS/ERS Standards PDFs online 
Annual Report: A review of the Alpha-1 Foundation’s statement of financial position, peer-reviewed research portfolio and honorariums and memorials of the last year. 2007 Annual Report
Research Registry Update: This newsletter is designed to provide new information about the Alpha-1 Research Registry and highlight advances in the field of Alpha-1 research.
Several of the above publications are available in Spanish (please refer to the order form on the Request a Publication link below).
Contents copyright ©2006 Alpha-1 Foundation. All rights reserved.
