News Archive : Alpha-1 Foundation

News Archive

02.03.12 » People on Medicare saved $2.1 billion on prescription drugs in 2011 under overhaul in healthcare law
02.01.12 » 2012 will mark the fifth anniversary of Rare Disease Day
02.01.12 » FDA approves "breakthrough" drug that treats cause of disease for 1,200 cystic fibrosis patients in US
01.30.12 » Karen Erickson, with lung function under 20% and in need of a transplant, still teaching people about Alpha-1
01.27.12 » Test to evaluate severity of COPD exacerbations may help researchers find better treatments
01.25.12 » COPD Foundation appoints Lawrence Stern, Michael Mayer to board of directors
01.25.12 » Massachusetts newspaper tells the love story of Alpha Sally Everett and her new book
01.24.12 » Hospital collaborative program cuts costs by billions and reduces deaths by 29%
01.23.12 » Celtic Connection Committee honors Alpha-1 researcher's success with the 2012 Shillelagh award
01.18.12 » Texas man shows support for Alpha wife by running in Houston Marathon
01.18.12 » Greg Hules, former chair of both Alpha-1 Foundation and Alpha-1 Association, dies of Alpha-1 lung disease
01.18.12 » Review questions value of flu drug Tamiflu
01.18.12 » Patients enrolling faster in pre-existing condition insurance plans, thanks to lower premiums, easier standards
01.17.12 » The Alpha-1 Rumble: 40 professional wrestlers plan fight to raise funds for Utah Alpha's liver transplant
01.17.12 » "Completely drug resistant" form of tuberculosis reported in India, Italy, Iran
01.13.12 » Want to understand genetic terms? Find out how to say them? There's an App for that.
01.12.12 » An explanation of how GINA law protects Alphas and others against genetic discrimination
01.12.12 » Free brochure offers tips for talking to your doctor and making important health decisions
01.12.12 » Nearly 500 state lawmakers urge support for Obama's healthcare reform, plan to file Supreme Court brief
01.11.12 » COPD Foundation adds NTM patients to Bronchiectasis Research Registry
01.11.12 » Texas man shows support for Alpha wife by running in Houston Marathon this Sunday
01.11.12 » Kamada gets Israeli patent for Alpha-1 drug
01.10.12 » Federal security agency creates "TSA Cares," a new program to help disabled travelers
01.09.12 » Foundation president elected to board of National Health Council, appointed to NIDDK
01.09.12 » Standard prostate cancer screen saves no lives, studies show
01.06.12 » COPD Foundation names former Goodwill Industries senior VP Dave Barringer as Foundation's new executive director
01.06.12 » Blood pressure drug helps prevent smoking damage to lungs of mice
12.16.11 » The 2011-2012 Oil Heat Program has begun
12.14.11 » National Health Council and NJ Congressman introduce MODDERN Cures Act to help develop "dormant cures"
12.14.11 » Foundation president has a busy time marking both Alpha-1 Awareness Month and COPD Awareness Month
12.13.11 » John Shook dies at 83; retired firefighter raised 17 children; active in church, pulmonary rehab group
12.09.11 » Breast cancer screening may do more harm than good, according to UK researchers
12.07.11 » Medicare extending 2012 enrollment, but you must call TODAY to get a time extension
12.07.11 » Free COPD community workshops in Florida
12.07.11 » Grifols president accepts "Business Leader of the Year" award from Spain-US Chamber of Commerce
12.06.11 » The EveryLife Foundation for Rare Diseases Holds its Third Annual Art Contest
12.05.11 » President of Alpha-1 Foundation, COPD Foundation discusses COPD with magazine for respiratory care professionals
12.05.11 » A post-transplant patient says "presumed consent" is the answer to shortage of organs for transplant
12.05.11 » Lung cancer research under-funded -- even though it kills 32,000 non-smokers every year, mosty women
12.01.11 » Blaming the patient: Iowa Hospital Association scoffs at claims that New York City patients are hard to please
11.30.11 » Medicare will pay for obesity counseling
11.28.11 » Obama names a former nurse, hospital chain executive to head Center for Medicare and Medicaid Services
11.23.11 » AlphaNet makes $500K Thanksgiving gift to support life-saving medical research of Alpha-1 Foundation
11.21.11 » Alpha Deb Labud, other University of Florida/Shands lung transplant recipients celebrate their success
11.18.11 » US Senate declares November COPD Awareness Month, names Alpha-1 as genetic cause
11.17.11 » 2012 "the year of the liver," for Alphas, doc predicts; Research Registry "desperately needs" liver-affected Alphas
11.17.11 » Study of liver disease recruiting young Alphas from 6 months to 25 years old at 11 sites across U.S.
11.17.11 » Canadian province won't pay for Alpha's infusions, though nearby provinces cover the drug cost
11.17.11 » "Step Forward for Alpha-1 Walk" brings 130 to park in Jupiter, FL, raises $55K for Alpha-1 research
11.16.11 » Today is COPD Awareness Day
11.14.11 » Supreme Court to hear challenge to Obama's changes in U.S. healthcare system
11.11.11 » Foundation CEO to give an update on latest Alpha-1 liver research on "Virtual Support Telecall"
11.11.11 » "I can feel the wind in my hair; you just don't know how great it feels": the obituary of Elwood (Woody) Wagner
11.11.11 » Most smokers try to quit and fail; medicine, counseling both help, but are under-used
11.11.11 » Patient Notification System (PNS): Make Sure You Are Registered!
11.10.11 » COPD Foundation to mark World COPD Day with webinar, Alphas and everyone with COPD invited
11.04.11 » Build publicity for Alpha-1 -- It's easier than you think!
11.04.11 » Foundation creates Apha-1 Awareness month video
11.04.11 » DRIVE4COPD campaign gets widespread attention as COPD awareness campaign reaches Tampa, FL
11.03.11 » Experimental drug shows strong benefit for 4-5% of cystic fibrosis patients
11.03.11 » Morton Ruderman, Alpha and philanthropist, dies; family foundation grant spearheaded airline oxygen ruling
11.01.11 » Alpha-1 Awareness Month is here -- some ways to help us raise awareness throughout the month of November!
11.01.11 » Many routine medical tests an overused waste of money, reports study by physicians group
10.31.11 » Alpha One Foundation of Ireland celebrates Chopin's life; composer probably had Alpha-1
10.31.11 » Cornell scientists find biochemical signal that allows mice to grow new lung tissue
10.28.11 » An Alpha-1 COPD Love Story: a "must read" not just for Alphas, but for anyone with a chronic disease
10.28.11 » 2012 Medicare premium increase less than expected
10.27.11 » X-ray screening does not reduce lung cancer deaths; CT scan screening might do better
10.26.11 » Study finds flu shots 59% effective, concludes that better flu vaccines are needed
10.21.11 » Alpha-1 Foundation meets high charitable giving standards of National Health Council, Wise Giving Alliance
10.20.11 » Access to care discussed in key issues dialogue
10.19.11 » Prevalence of Alpha-1 in Ireland among highest in the world, Irish study reports
10.18.11 » Patient advocacy coalition asks Supercommittee to avoid cuts in Medicare Part D program
10.13.11 » U.K. researchers develop gene therapy from skin cells that makes Alpha-1 liver cells work properly in mice
10.13.11 » Medicare 2012 enrollment begins Saturday, Oct. 15
10.10.11 » New Zealand woman celebrates 25th anniversary of transplant for Alpha-1 liver disease
10.10.11 » FDA approves replacement for combination inhaler
10.07.11 » Alpha-1 Research Registry director to discuss latest research updates at Charleston, SC education day
10.06.11 » Cloning method may help make personal stem cells -- for research, but not useful for therapy
10.06.11 » Rare disease organizations ask FDA to allow more patients' views on drug risks and benefits
10.05.11 » Lung researcher, clinician keynotes Indianapolis Education Day
10.05.11 » AARC names Grace Anne Dorney Koppel as keynote speaker for 2011 congress in Tampa, FL
10.04.11 » Alpha-1 Foundation featured in Genetic Alliance's "meet your neighbors" series
10.04.11 » Friday night's Trivia Night in Columbia, Missouri
10.03.11 » Vaccinations can provide "herd immunity" and protect many from disease, NIH says
10.03.11 » Worldwide COPD challenge discussed
09.30.11 » Medicare 2012 enrollment begins Oct. 15, ends early this year; medicare expert comments on this year's changes
09.29.11 » "Backwoods Bash" will help Maine woman disabled by Alpha-1 lung disease
09.29.11 » Alyce Yout joins “The Bailey Brigade” as Team Alpha-1 rides again in annual Escape to the Cape bike trek
09.27.11 » International study finds 16 areas of genetic code related to lung health, sheds light on lung diseases
09.27.11 » Drug shortages increasing for many reasons, FDA told
09.26.11 » Baylor researchers pinpoint location of enzyme contributing to Alpha-1 liver disease
09.23.11 » No more Primatene Mist after Dec. 31; it's the last FDA-approved over-the-counter asthma inhaler
09.22.11 » Experts urge flu shots; choices in U.S. include "intradermal" shot for people who fear needles
09.19.11 » Texas hold 'em and euchre tournament proceeds go towards Alpha-1 Foundation's research programs
09.19.11 » FDA blasts Dr. Oz claim of arsenic in apple juice
09.19.11 » Tennessee Alpha praises God for lung transplant
09.14.11 » Baxter announces milestone 100,000 patients screened for Alpha-1
09.14.11 » "The Last Heart Attack" boosts expensive, high-tech medical care with doubtful benefits
09.13.11 » Foundation and AlphaNet honor former CSL president Peter Turner as "friend of the Alpha-1 community"
09.13.11 » Step Forward for Alpha-1 walk planned At Carlin Park, Jupiter, FL, in November
09.13.11 » Concern grows that the elderly get too many medical tests
09.13.11 » Proposal would allow patients to see their own lab test results, rather than having to ask their doctor
09.09.11 » Obama blocks stricter ozone rule
09.09.11 » Canadian study finds 1 in 4 chance of someone developing COPD
09.08.11 » Appeals court rejects two challenges to healthcare law
09.02.11 » Tips for travelers on original Medicare: the rules have changed in Medicare Medical Equipment Program
09.01.11 » Florida finally gets a database to track pain pill abuse
08.31.11 » Daily azithromycin may help COPD patients avoid getting sick as often, new study finds
08.26.11 » Weight loss is not that simple: Cutting 500 calories a day doesn't equal a pound lost per week
08.24.11 » Auction experts, economists, industry groups challenge Medicare bidding program for home oxygen, medical equipment
08.24.11 » Almost all major heart attack patients get correct treatment at American hospitals, new study finds
08.23.11 » New Jersey to screen newborns for congenital heart disease
08.23.11 » Alphas with severe emphysema live longer after lung transplant; Swedish study finds 11-year median survival
08.18.11 » First baby born to two liver transplant recipients
08.17.11 » University of North Carolina researchers publish study on gene therapy of Alpha-1
08.16.11 » Medicare "extra help" can save low-income people a lot of money on prescriptions
08.15.11 » Federal appeals court says Affordable Care Act mandate to buy health insurance is unconstitutional
08.12.11 » Where is the consumer's voice in "Top Doctors/Best Hospitals" rankings?
08.12.11 » Minnesota family race in memory of "Poppa"
08.11.11 » Genetically-engineered T cells seem to have cured two out of three patients dying of leukemia
08.11.11 » Alpha family call themselves "Extreme Campers"
08.11.11 » Canadians "commited to our system of health care," want to transform it for the better, says report
08.11.11 » Even simple strolling protects heart, and legs, too
08.10.11 » Minnesota walk, ice cream social this Saturday to raise research funds and awareness of Alpha-1
08.08.11 » Alpha-1 Foundation expresses support for bill exempting orphan drugs from new fee
08.08.11 » American Thoracic Society makes “Breathing in America” free online; book aims to increase public awareness of lung disease
08.05.11 » Alpha-1 mother writes a goodbye message to her son, killed by a drunk driver
08.05.11 » The debt-limit deal "super committee"
08.05.11 » How the debt-limit deal affects Medicare
08.03.11 » Kamada begins testing Alpha-1 augmentation therapy as possible diabetes treatment, gets FDA orphan drug approval
08.03.11 » Grifols reorganizes North American commercial operations
08.02.11 » Penn launches center for treatment of orphan diseases, thanks to $10 million anonymous grant
08.02.11 » Need some help getting to the doctor?
08.02.11 » New guidelines released for COPD, now the 3rd leading cause of death; first advice remains: Quit smoking
08.02.11 » Needle biopsies of lungs are riskier than previously believed
08.01.11 » Fish oil for pregnant mothers helps babies resist colds, study finds
07.29.11 » American Thoracic Society blasts EPA for delay in lowering ozone standards in air
07.29.11 » Tylenol maker lowers maximum daily dose
07.29.11 » Acetaminophen by far the most common drug causing liver damage requiring transplant
07.28.11 » Alphas asked to urge Congress to balance the budget without harming rare disease patients
07.27.11 » NIH Director Collins says permanent flu shot possible
07.20.11 » The Alpha-1 Project names Jean-Marc Quach, longtime leader in healthcare management and marketing, as executive director
07.19.11 » People living a little longer with lung transplants; median survival rate edges up to 5.7 years
07.19.11 » Married men having heart attacks get to the hospital faster than single men
07.19.11 » Secondhand smoke linked to hearing loss in teens
07.18.11 » Two chances for a COPD Conference
07.15.11 » Movies show fewer smokers onscreen
07.15.11 » Alpha-1 Foundation, Association seek meeting to present case for "Compassionate Allowance" for Alpha-1 disability
07.14.11 » Placebos seem to help asthma as much as asthma inhalers, Boston researchers find in small study
07.14.11 » Iowa Alpha gives the "scoop" on Alpha-1 awareness
07.13.11 » Eight glasses of water a day, a myth?
07.11.11 » Affordable Health Insurance Exchanges announced, giving everyone "the same insurance choices as members of Congress"
07.07.11 » Third annual "Get the Scoop on Alpha-1"
07.06.11 » Healthy lifestyle sharply cuts risk of sudden heart attack death in women, study reports
07.05.11 » FDA approves Arcapta Neohaler, a once-a-day inhaler for long-term maintenance of COPD
07.05.11 » Stem cell funding bill gets Republican co-sponsor
07.01.11 » 3 CT scans a year might cut lung cancer deaths by 20%, drastically increase "false positive" findings, at high cost
07.01.11 » Hospital's newest weapon against infection is duct tape -- it works fine, and saves money
06.30.11 » Sen. Dick Durbin becomes co-chair of the Congressional COPD Caucus
06.29.11 » Alpha-1 Foundation appoints new Board members
06.29.11 » Alpha-1 Foundation presents awards for community involvement and fundraising at national conference
06.29.11 » "Alpha-1 -- Yesterday, Today and Tomorrow" is theme at Alpha-1 Association's 20th annual education conference
06.29.11 » Sens. Lieberman, Coburn propose raising Medicare age to 67, increase monthly premiums by $15-20
06.29.11 » Doctors failed to reveal serious complications of back surgery product, reports Spine Journal
06.28.11 » Health care insurance for people with pre-existing conditions now easier to find and more affordable
06.23.11 » Grifols completes aquisition of Talecris Biotherapeutics
06.17.11 » Lung cancer deaths in women drop for the first time on record, following years of decline in smoking
06.15.11 » Tiotropium taken as mist for COPD may increase risk of death
06.08.11 » Halozyme and Intrexon hope to develop recombinant Alpha-1 therapy delivered just under the skin
06.08.11 » Talecris will adopt name of Grifols, Inc. as two companies form teams to consolidate operations
06.06.11 » Grifols names board to oversee integration of business with Talecris Biotherapeutics
06.06.11 » People with pre-existing conditions get help with premiums for health insurance
06.06.11 » Colorado Eagle Scout project encourages Alpha-1 awareness
06.06.11 » New study drug shows 63% reduction in deaths after 6 months in patients with metastatic melanoma
06.03.11 » Hundreds in Denver Get the Scoop on Alpha-1 and enjoy one of food writer's favorite ice creams
06.02.11 » Is it better to get an organ transplant at daytime or night? Study finds time of day doesn't make a difference
06.02.11 » WHO panel says cellphones "possibly carcinogenic," but link to cancer is slim, experts report
06.01.11 » Alpha-1 Foundation sees Grifols purchase of Talecris as "great opportunity to expand productive collaboration"
06.01.11 » FTC approves Grifols agreement to acquire Talecris
05.31.11 » Baxter resumes distribution of Aralast NP for Alpha-1 infusions, with new ancillaries included
05.27.11 » High-dose Vitamin D improves results of pulmonary rehab programs, researchers in Belgium report
05.27.11 » People with rheumatoid arthritis twice as likely to have COPD, Israeli study finds
05.18.11 » Home oxygen users asked to support bill repealing supplier bidding, improve access to home oxygen
05.16.11 » Perfusion process might improve success rate in lung transplants
05.16.11 » BYU study shows how Alpha-1 protein prevents HIV virus from multiplying
05.16.11 » Boston researchers find stem cells in the lung that can rebuild airways, air sacs and blood vessels in mouse lungs
05.12.11 » Baxter advises customers to stop using Baxject II device for mixing Aralast NP; particles reported in solution, but no safety issue
05.09.11 » More than 100 Alphas and friends raise research funds with Washington Bridge Walk, are featured on TV news
05.06.11 » "Billy's Team Alpha" will join George Washington Bridge Walk to raise funds for Alpha-1 research
05.04.11 » Celebration of Life offers message of hope
05.03.11 » Canadians with COPD live longer on twice-a day beta agonist drugs than on once-a-day anticholinergics
05.02.11 » Alpha-1 Foundation applauds Grifols, Talecris consent agreement winning tentative approval of Grifols acquisition of Talecris
05.02.11 » Grifols, Talecris sign consent agreement with FTC staff, win tentative approval of acquisition
05.02.11 » Southwest Florida COPD Community Team Workshop
04.27.11 » Creating hope: NIH, FDA and others push for more drug development for rare diseases
04.25.11 » Gordon Cadwgan Sr., dies at 97; family donated $1 million for Alpha-1 Foundation research programs
04.25.11 » Alpha-1 Foundation and Association: Urge your representative to join Rare, Neglected Diseases Caucus
04.18.11 » Most parents comfortable with having children tested for adult diseases, Georgetown University research study finds
04.15.11 » US website tells of need for organ donations
04.14.11 » April is National Donate Life Month
04.13.11 » Foundation congratulates Grifols CEO on Global Business Leader award by Spain - US Chamber of Commerce
04.13.11 » Grifols CEO named Spain's Global Business Leader
04.11.11 » Kamada gets U.S. patent for inhalable alpha-1 therapy
04.07.11 » Dance Under the Stars and Celebrate Life on April 29
04.07.11 » Belly Dancing for Breath
04.07.11 » Law now allows those with rare diseases to be paid for clinical trials, keep SSI benefits
04.07.11 » Vicki Joseph: Work in Progress
04.07.11 » Alpha coordinates bicycle team in Trek Across Maine
04.05.11 » Taking back life one mile at a time
03.30.11 » Join more than a hundred Alphas and friends at the fourth annual George Washington bridge walk, May 7
03.30.11 » Alpha-1 Foundation, Association urge messages to Congress supporting full funding for NIH
03.29.11 » DRIVE4COPD Wins PRWeek Healthcare Campaign of the Year; screened more than a million for COPD in first year
03.24.11 » Study finds Spiriva superior to Serevent in preventing exacerbations of COPD
03.23.11 » Affordable Care Act now a year old, time line makes changes easy to understand
03.17.11 » Oxygen removed from airplane bathrooms
03.16.11 » Arizona Alpha family meets fundraising target for specially trained dog
03.14.11 » Study hopes to show Alpha-1 protein can slow loss of insulin cells in newly-diagnosed diabetes patients
03.14.11 » VA program to cut hospital readmissions for COPD patients canceled because of patient deaths
03.11.11 » Researchers say blood test may detect emphysema early, encourage smokers to quit
03.11.11 » Gordon Snider to be honored at Celtic Connection
03.09.11 » Father of Alpha-1 baby will run Boston Marathon to raise Alpha-1 awareness and research funds
03.09.11 » New type of adult stem cell shows promise
03.08.11 » Daytona Beach workshop offers CEU credits to healthcare providers
03.08.11 » Daytona workshop offers patients and families free tips for coping with COPD, Alpha-1
03.07.11 » FDA approves Daliresp, new drug for bronchitis; patients will get medication guide warning of risks
03.07.11 » American, European leaders discuss cooperation on new therapies for rare diseases.
03.04.11 » Golf tournament to benefit transplant patients at Shands/University of Florida transplant center
03.04.11 » Health Care Reform Act never required end-of-life counseling
03.03.11 » Alpha-1 Foundation MASAC chair presents case for Alpha-1 liver research to FDA committee hearing
03.03.11 » Education program for doctors, healthcare professionals cuts COPD costs and hospitalizations in East Texas study
03.03.11 » Genetic Alliance plans BabysFirstTest.org, an online newborn screening information clearinghouse
03.01.11 » Alphas, COPD patients welcome at Orlando, FL symposium on long-term oxygen therapy
02.28.11 » Alpha-1 Foundation supports Rare Disease Day, Feb. 28
02.25.11 » "Yearning to breathe free" video gets attention; Lady Liberty wrapping revealed as special effects
02.25.11 » Alpha-1 protein, gene therapy both effective treatments for rheumatoid arthritis in mice, researchers report
02.24.11 » Senators urged to reject drastic budget cuts at National Institutes of Health, Environmental Protection Agency
02.23.11 » Respiratory therapists, Alphas, COPD patients join forces for AARC Advocacy Day in Congress
02.17.11 » Kamada says first year of inhaled Alpha-1 augmentation trial shows excellent safety, tolerability
02.16.11 » AARC to host webcast Friday, Feb. 18 on upcoming Hill Day
02.11.11 » Two foundations applaud NHLBI proposal for $12 million research study on the genetics of Sarcoidosis and Alpha-1 Antitrypsin Deficiency
02.09.11 » Jamie Gwyn Barnhill, PhD, dies of Alpha-1 liver disease
02.07.11 » NHLBI is seeking research centers for $12 million study of the genetics of Alpha-1 and sarcoidosis
02.02.11 » Alphas and Alpha-1 carriers, now's the chance to be heard; survey asks opinions on programs, access to medical care
02.01.11 » Florida COPD Awareness Day, Feb. 9
01.26.11 » Learn "what you can do to feel better," at San Diego Alpha-1 education day Feb. 12
01.25.11 » Irish researchers report breakthrough in understanding mechanism of Alpha-1, how augmentation can help
01.25.11 » Swedish study finds patients on oxygen die less often from respiratory disease, more from heart disease
01.21.11 » New website on family health history helps both families with children and healthcare professionals
01.19.11 » TSA outlines rules for people who need to take oxygen concentrators, respirators or medicine aboard a plane
01.18.11 » Two special-needs children in Arizona need a little help to get one very special friend
01.18.11 » Florida COPD Awareness Day Feb. 9 features ride on COPD Shuttle, chance to meet legislators
01.10.11 » Ed Brailey eulogized as an Alpha who "paid forward the gift of life" after lung transplant
01.07.11 » FDA wants public comment on new cigarette warnings
01.06.11 » Lung-affected Alphas invited to take short asthma survey prepared by Allergy & Asthma Network
01.05.11 » Alpha-1 Foundation awards two research grants with support from Talecris Biotherapeutics
01.04.11 » FDA announces voluntary recall of mislabeled albuterol vials for nebulized inhalation therapy
01.04.11 » "Physician Compare" allows consumers to research and compare doctors and healthcare professionals
12.30.10 » One year after transplant, West Virginia Alpha reflects on life with a working pair of lungs
12.16.10 » Dr. Oz talks cancer and Alpha-1
12.15.10 » Peter Duttweiler, Alpha-1 author, support group leader, advocate for fellow veterans, dies at 62
12.14.10 » Hope for the Holidays
12.13.10 » Talecris testing higher dose of Prolastin-C for Alpha-1
12.13.10 » Chilean miners rescue suggests a challenge: Commit to curing a respiratory disease by the year 2020
12.10.10 » Mike Berger, Alpha-1 advocate, dies at 52
12.10.10 » Still living life to the fullest, an Alpha and her husband are biking through New Zealand
12.10.10 » Medicare Part D prescription drug "doughnut hole" will begin to close rapidly in 2011
12.09.10 » Chronic lung disease is now the 3rd leading cause of death in United States, say new CDC health statistics
12.06.10 » Better Business Bureau advertises its Wise Giving Alliance Seal to help donors make decisions on charitable giving
12.03.10 » Australian researchers say many "ineligible" COPD patients may be helped by supplemental oxygen
12.03.10 » American Thoracic Society asks for help in urging Congress to support Year of the Lung
11.30.10 » Higher levels of Vitamin D recommended by IOM committee; low recommendations disappoint some experts
11.22.10 » Alpha-1 5K Walk Miami -- a good time for Alpha-1 awareness and fundraising on Key Biscayne
11.22.10 » More than 10,000 Ground Zero workers accept $625 million from New York City in 9/11 settlement
11.19.10 » Massachusetts Alpha marks the 10th anniversary of her lung transplant with a fundraising party
11.19.10 » Medicare open enrollment under way; questions to ask before changing Medicare health, drug coverage
11.19.10 » Canadians know about mammography, but 90 percent never heard of spirometry for COPD, survey finds
11.17.10 » Singing helps COPD patients improve shortness of breath and fatigue, Illinois researchers report
11.17.10 » British report for World COPD Day finds COPD strikes many working adults, calls for national health strategy
11.15.10 » Arizona Alpha-1 family need funds for trained dog who may save child's life during seizures
11.15.10 » Ernst & Young names Stern Entrepreneur of Year in Health Sciences for making Talecris "world-class business"
11.12.10 » Alpha-1 augmentation therapy reduces loss of lung tissue, says report in journal Respiratory Research
11.09.10 » Arizona family, community hold carnival to raise funds for boy who needs service dog to monitor seizures
11.08.10 » Premiums for US high-risk health insurance pools will be cut by 20 percent under new plan
11.08.10 » Man's best friend is an Alpha-1 supporter too
11.04.10 » Alpha-1 Awareness Month highlights Alpha-1, most important known genetic cause of COPD, in Year of Lung
11.03.10 » Once-daily drug effective in COPD, researchers say
11.03.10 » Report claims FTC may block Grifols acquisition of Talecris
11.03.10 » Prolastin-C released in Canada
11.02.10 » "American Profile" magazine tells the story of Walsh family and importance of testing for COPD and Alpha-1
11.02.10 » COPD Foundation jumps into COPD Awareness Month with two COPD Summits
11.01.10 » Toolkit helps Medicare advocates develop education materials
10.28.10 » Irish Alphas celebrate 200th anniversary of Chopin's birth; composer probably had Alpha-1 Antitrypsin Deficiency
10.28.10 » Join us at our 2nd annual Alpha-1 5k walk
10.27.10 » Wyoming Alpha seeks help for lung transplant
10.25.10 » Obama signs law allowing rare disease patients to participate in clinical trials, keep SSI, Medicaid
10.25.10 » Baxter announces commercial launch of Glassia, liquid augmentation therapy for Alpha-1
10.25.10 » Alpha-1 Foundation presents honors, inspirational speakers at Donor Recognition Dinner
10.21.10 » SE Regional COPD Summit in Atlanta, GA Nov. 15
10.21.10 » Study finds Prolastin-C as effective as Prolastin
10.20.10 » Want to learn how to organize an event and raise awareness and funds for Alpha-1 research?
10.19.10 » Florida COPD coalition kicks off first annual COPD community workshop series
10.18.10 » Time to get a flu shot; just one needed this year
10.18.10 » FDA schedules orphan drug workshop
10.08.10 » State of Florida grants $1 million for lung transplant research center; Alpha doc Brantly directs research efforts
10.07.10 » Team Alpha-1 takes to the Cape again, wins Silver Spoke award and raises $60,000 for Alpha-1 research
10.06.10 » Arrr ya One? Clever Alpha-1 awareness T-shirt design wins Facebook contest
10.06.10 » New equation may help to ensure more calories, better nutrition for underweight COPD patients
10.05.10 » Dennis Pollock dies; Oklahoma Alpha played key role in passage of Genetics Information Nondiscrimination Act (GINA)
10.05.10 » Alphas tour Talecris Prolastin-C plant
10.04.10 » Armed with new tools, CMS hopes to root out Medicare fraud before it happens
10.04.10 » Alpha-1 Foundation applauds removal of lifetime limits on medical coverage, coverage of children with pre-existing conditions
10.04.10 » Kaiser Foundation website explains details of Health Reform Act as new provisions are implemented
10.01.10 » Last-minute push for EPA to clean up power plants
09.30.10 » Team Alpha-1 begins its 15th annual "Escape to the Cape" to raise Alpha-1 awareness and funds
09.30.10 » Tony Curtis dies at 85; actor had COPD
09.28.10 » The Virginia Alpha-1 5K "Hero Walk" began with a sick baby with jaundice and a concerned mother
09.24.10 » Improving Access to Clinical Trials Act passes Congress; allows rare disease patients to serve in clinical trials and keep benefits
09.21.10 » Talecris awards young researchers grants to study Alpha-1 at European Respiratory Society congress
09.20.10 » Stem cell researchers group website offers to check on bogus stem cell clinics
09.20.10 » Spiriva might help patients with poorly controlled asthma, preliminary study finds
09.17.10 » FDA grants $1 million under Orphan Drugs Act to fund clinical trial of genetic treatment for Alpha-1
09.16.10 » Alpha-1 Canada lobbies Ontario government for augmentation therapy reimbursement
09.10.10 » Years after 9/11, Alphas in New York City Fire Department continue to lose lung function rapidly
09.08.10 » Another contest... Another cool prize...
09.03.10 » Nevada woman's Alpha-1 family tree wins the Foundation's Alpha-1 art contest for Facebook friends
09.02.10 » NIH plans conference on clinical research for rare diseases
09.01.10 » Viewoint: Lowering the Cost of Healthcare From the Patient’s Perspective
09.01.10 » 112 from Alpha-1 liver community join teleconference to hear plans for Foundation's new Liver Initiative
09.01.10 » Website provides explanations, answers common questions on Genetic Information Nondiscrimination Act
09.01.10 » FDA asks Baxter to stop distributing Aralast NP brochure to physicians
08.27.10 » UK researchers use reprogrammed adult skin cells to make stem cells that model genetic diseases
08.26.10 » Kamada CEO says agreement with Baxter on Alpha-1 augmentation product will help make company profitable
08.25.10 » NIH withholding $54 million in grants after judge's ruling halts US funding for embryonic stem cell research
08.25.10 » World Spirometry Day is Oct. 14, part of Year of the Lung celebration
08.25.10 » Alpha-1 Canada says Ontario no longer accepting funding applications for augmentation therapy for Alphas
08.24.10 » Foundation congratulates Baxter, Kamada on agreement to distribute augmentation therapy; hopes for closer relationship with community
08.24.10 » Baxter, Kamada sign agreement for Baxter to distribute, manufacture Glassia, liquid IV augmentation therapy
08.24.10 » Judge strikes down Obama policy allowing stem cell research; scientists scramble to assess impact
08.24.10 » Radiologists assure patients of safety precautions against excessive radiation in medical tests, clinical studies
08.23.10 » Team Harley runs for a cure
08.20.10 » RT magazine editorial quotes Foundation release
08.20.10 » Average Medicare Part D (prescription drug) plan likely to cost just $1 more in 2011, CMS estimates
08.20.10 » Even a little cigarette smoke seems to damage airway cells for everyone, even those without Alpha-1
08.20.10 » Palliative care boosts a patient's quality of life, lifts moods and even lengthens lives, study finds
08.18.10 » Alpha-1 Antitrypsin Deficiency: It's now solving crimes -- on national television series "Rizzoli & Isles"
08.12.10 » Medicare funding may last till 2029 due to healthcare reform
08.11.10 » COPD Foundation backs bill to improve VA programs for prevention and treatment of COPD
08.10.10 » Foundation thanks Alphas for joining "Virtual Lobby Day"
08.09.10 » Welcome to The Alpha-1 Channel -- all Alpha-1, all the time!
08.06.10 » Thanks a million!
08.03.10 » Iowa Alphas make sure 250 people get the scoop on Alpha-1, enjoy ice cream and music, and raise funds
08.02.10 » Alpha-1 Foundation holds art contest, "What Alpha-1 Means to Me," in memory of Alpha artist Bill Reese
07.30.10 » The 7 Reasons why you should be an Alpha Friend
07.29.10 » COPD patients who socialize live longer; study finds loneliness is as harmful as alcoholism and smoking
07.26.10 » "Bad Blood" film documents tragedy of tainted US blood supply in 1970s-1990s
07.26.10 » New US website on Disabilities and Health
07.23.10 » Patient advocacy group applauds new regulations to strengthen patients' right to appeal health insurance denials
07.23.10 » Dr. Donohue suggests more Alpha-1 testing
07.16.10 » Charles Leonard Geiger, MD, dies; father of well-known Alpha
07.14.10 » FL jury awards $21 million to smoker with COPD
07.14.10 » Alpha-1 patient in Canada doing well after getting lung transplant despite infection with H1N1 (swine flu) virus
07.08.10 » Cochrane study poorly designed, ignores wealth of data, does disservice to rare disease patients, says Alpha-1 Foundation
07.06.10 » Iowa Alpha-1 education day August 28 features talks on importance of exercise, getting to positive, advocacy opportunities and More
07.02.10 » FDA approves Kamada's IV drug Glassia as 4th US augmentation therapy for Alpha-1
07.01.10 » New government plan offers medical coverage for uninsured Americans with pre-existing health conditions
06.30.10 » Talecris pays for Canadian Alpha-1 phenotype testing at University of Florida after U of Alberta ends Alpha-1 testing
06.30.10 » Foundation Public Policy Director urges FDA to "license fast and follow long" to speed new drugs for rare diseases
06.17.10 » Do you have the scoop on Alpha-1?
06.17.10 » Kathy Haduck receives Helen Chase Walsh Memorial Award
06.16.10 » Foundation scientific director receives "outstanding investigator" award from Hungarian Respiratory Society
06.16.10 » $1 million donation by Cadwgans to help Alpha-1 Foundation "find new therapies and ultimately, a cure"
06.14.10 » Foundation presents Building Friends for a Cure awards
06.14.10 » Alpha-1 kids, families help set attendance record at national conference; Foundation reaches Million Dollar Match goal
06.09.10 » Alpha-1 protein to be tested as treatment for Type 1 diabetes
06.08.10 » Childhood liver disease studies enrolling patients; some travel funds available to eligible families
06.07.10 » Alpha-1 Foundation says Grifols acquisition of Talecris could broaden worldwide access to augmentation, speed aerosol therapy development
06.07.10 » Marta Strock dies; one of first AlphaNet coordinators
06.07.10 » Bill Reese dies; famed western artist, former board member of Alpha-1 Foundation and Association
06.07.10 » Spanish company Grifols to acquire Talecris for $3.4 billion
06.07.10 » Grifols, Talecris press release on planned acquisition
06.04.10 » Whom to test, whom to treat, for Alpha-1?
06.04.10 » Anti-seizure drug improves liver disease in Alpha-1 mice
05.28.10 » Reception at World War II Museum honors Foundation research grant winners and late Alpha John Kushner
05.25.10 » CSL Behring donates medicines to Haiti earthquake relief
05.25.10 » COPD Foundation unveils motion simulator capsule
05.25.10 » How did you get tested? Alphas tell their stories
05.21.10 » Medicaid will provide coverage for uninsured with low incomes under health care reform law
05.21.10 » National high-risk pools for people with pre-existiing health conditions: how they will work
05.21.10 » Cruise to a cure with the Mohawk Ramblers
05.17.10 » Study finds vitamin E cuts COPD risk in women
05.17.10 » NIH director Francis Collins to keynote NHLBI meeting for public interest organizations
05.14.10 » Rain forces postponement of Alpha Okies golf tournament; registration re-opens for tourney, now scheduled July 10
05.14.10 » Walkers raised nearly $13,000 for Alpha-1 Research
05.13.10 » Alpha-1 support group visits Boston University research lab, views slides of stem cells generated from Alpha-1 skin cells
05.12.10 » Foundation praises NIH and FDA for joint effort to speed new therapies to public
05.11.10 » Study finds no increased risk of disease for SS phenotype
05.10.10 » Most COPD patients referred to pulmonary lab agree to take test for Alpha-1, see test as important and positive
05.10.10 » Kamada IV augmentation therapy is named "Glassia"
05.06.10 » Cross-country bike ride to raise awareness for lung disease
05.06.10 » Bob Haggerty dies at 72; former treasurer, board member of Alpha-1 Association
05.05.10 » Richard Sifers to receive Baylor College of Medicine's highest award to faculty members for education efforts
05.04.10 » CSL plans "Walk for Breath" in Orlando, FL, June 10
05.04.10 » Take your family to Disney, and raise their understanding of the family genes, at national Alpha-1 conference
05.04.10 » Alpha-1 Foundation marks 10th annual Celebration of Life; special events put us on the verge of our Million Dollar Match
05.04.10 » Florida COPD Coalition hosts first annual Florida Respiratory Rally, “Surviving the COPD Jungle”
05.04.10 » FDA orders Baxter to recall, destroy Colleague infusion pumps
05.03.10 » Rare diseases offer great potential value to medical research
04.29.10 » Alpha-1 Foundation closes in on Million Dollar Match just a day before Celebration of Life; pledges keep coming in
04.29.10 » Sixth annual Alpha-Okies Golf Classic, May 15
04.29.10 » Connecticut woman sues ex-employer for GINA violation; says she was dismissed due to carrying breast-cancer gene
04.28.10 » Talecris releases letter to Alpha-1 community outlining research strategy, including recombinant alpha-1 protein
04.20.10 » Medicare issues sanction against Aetna for failure to serve Medicare prescription drug patients
04.20.10 » Maryland man will ride cross-country for a cure
04.19.10 » Retired upstate NY teacher turns her energy to Alpha-1 education and support
04.14.10 » Childhood asthma strongest COPD risk factor?
04.14.10 » FDA phasing out seven inhalers for asthma, COPD
04.13.10 » Alpha sings "Songs for Friends and Family" for Alpha-1 Research
04.13.10 » Biotech drugs expected to become best sellers by 2014
04.09.10 » FDA panel votes against new COPD treatment as agency sends out stream of warning letters, asks investigation of radiation devices
04.09.10 » Dance under the stars and celebrate life on April 30
04.09.10 » Athlete will run Boston Marathon in honor of Alphas
04.07.10 » Article offers lung health professionals tips for diagnosing Alpha-1
04.07.10 » Experimental vaccine seems to reduce COPD flare-ups
04.06.10 » CT scans may detect smokers likely to develop COPD
04.05.10 » FDA letters to CSL, Talecris direct changes in promotional labeling for Alpha-1 augmentation products Prolastin and Zemaira
04.01.10 » Surgeon General's Family Health Portrait tool collaborates with HealthVault to expand services
04.01.10 » More than 100 Alphas, friends and family expected to "walk for a cure" May 8 in third annual George Washington Bridge Walk
03.31.10 » Georgia Alpha-1 Education Day April 17 features talks about exercise, latest research (and how to participate), and living with lung or liver disease
03.31.10 » The life of Vicki Joseph remembered: Memorial booklets are still available celebrating her life "in her own words"
03.30.10 » Judge strikes down seven gene patents related to cancer, casting doubt on industry patents for thousands of human genes
03.26.10 » Congress gives final passage to health care reform bill, adds subsidies, softens penalties, gradually closes "doughnut hole"
03.25.10 » Senate passes health care reform bill, now back to House for final vote
03.24.10 » Stewart Windham, active in Alpha-1 and COPD advocacy and support, dies at 55
03.23.10 » Home medical equipment providers unhappy with health care reform bill
03.23.10 » Number of Canadians diagnosed with COPD soars, but death rate and percentage of smokers both decrease in Canada
03.22.10 » House approves health care reform bill; futher action expected in Senate this week
03.22.10 » NIH Director Collins honored at reception
03.19.10 » Medicare Rights Center backs health care reform
03.18.10 » Video aims to find more Alphas
03.18.10 » NIH announces Genetic Testing Registry
03.17.10 » Alpha-1 prevalence in Ireland among the highest in world populations, reports Alpha-1 Foundation of Ireland
03.17.10 » Alphas, families and friends learn how to raise Alpha-1 awareness, funds for research at Building Friends for a Cure training program
03.15.10 » More than 270 celebrate "Celtic Connection" and raise funds for Alpha-1 research
03.08.10 » Alphas, COPD patients join congressional health briefing to raise awareness of lung disease, need for access to care
03.05.10 » Ontario, Canada's largest province, halts new approvals for Alpha-1 augmentation therapy
03.01.10 » NHLBI's lung disease director to discuss the latest lung research at this Saturday's Alpha-1 education day in Alexandria, VA
03.01.10 » Alpha-1 couple join COPD awareness campaign in England
02.26.10 » Virginia Alpha runs to raise cancer funds, Alpha-1 awareness
02.26.10 » One flu shot should be enough next year; FDA panel recommends H1N1 be included in regular flu shot
02.25.10 » "10 Steps Program" offers continuing education to physicians, healthcare providers on assessing and managing COPD
02.23.10 » UK Alpha runs 10K for Alpha-1 awareness
02.18.10 » Canadian regulators approve Prolastin C for infusion
02.17.10 » Michigan Alpha raising money for lung transplant
02.16.10 » A liver for LuLu: One family's tragedy brings life to others
02.11.10 » Celtic Connection: Have fun, help raise money for Alpha-1 research
02.10.10 » Michael Jackson died from prescription sedative, had chronic lung inflammation and other respiratory issues, coroner finds
02.08.10 » Talecris gets FDA "orphan drug" designation for inhaled treatment for Alpha-1
02.04.10 » "Hugs for Holly" campaign uses Twitter, Super Bowl to help raise funds to pay for lung transplant
02.03.10 » COPD Foundation, NASCAR, healthcare organizations and celebrities join campaign for early detection of COPD
02.02.10 » COPD causes more hospitalizations in Canada than heart attacks, says Canadian Thoracic Society
02.02.10 » Get health information on your cell phone
02.01.10 » Talecris, other pharmaceutical firms donate to Haiti relief
01.28.10 » UK Alpha fights for free oxygen when flying
01.26.10 » Alpha-1 Foundation joins global Year of the Lung campaign
01.26.10 » Foundation scientific director to speak about Alpha-1 and COPD at Florida "Pulmonary WinterCourse"
01.21.10 » Foundation offers training on fundraising in March; key part of Building Friends for a Cure program
01.20.10 » Pork safe to eat, won't cause H1N1 swine flu, says USDA
01.19.10 » Maryland hospital opens pulmonary rehab center with help from Koppels
01.12.10 » FAA approves four more portable oxygen concentrators (POCs) as carry-on units for airline travel
01.11.10 » Kamada gets contracts for AAT augmentation in Brazil
01.05.10 » Blood-oxygenating device may replace ventilator for severely ill lung patients
01.04.10 » Nine-year-old Alpha raises thousands in NY store's letters-to-Santa campaign
12.31.09 » Pennsylvania Alpha finds a way to help others cope
12.29.09 » Boston University study of Alpha-1 mice shows promise that gene therapy may improve COPD in Alphas
12.18.09 » Alphas, families urged to take action to eliminate caps on health insurance benefits in Health Care Reform bill
12.17.09 » NORD promotes Rare Disease Day Feb. 28, 2010
12.17.09 » COPD education workshops planned for primary care doctors as part of Year of the Lung celebration
12.16.09 » Foundation CEO named to NIH Council of Councils
12.14.09 » European, Australian researchers report genetic factors in COPD
12.14.09 » Tom Petty, MD, dies at 76; pioneer in oxygen therapy, pulmonary rehabilitation; known as "father of home oxygen"
12.11.09 » Holiday decorating for a cure: Brighten any room and help to fund research on Alpha-1 Antitrypsin Deficiency
12.09.09 » CSL names US leader executive director, chief operating officer
12.07.09 » Foundation honors famed researcher, clinician Gordon Snider, MD
12.01.09 » CSL Behring announces winners of holiday drawing contest
11.30.09 » South Carolina Alpha, 11, collects toys for sick kids
11.25.09 » Both Alpha-1 Awareness Month and COPD Awareness Month marked with many activities throughout Florida
11.25.09 » RT magazine article features Alpha-1, Alpha-1 Foundation
11.24.09 » Indiana Alpha urges COPD patients to get tested
11.23.09 » PA Alpha gives thanks for new lungs
11.18.09 » FDA agrees to review Kamada Alpha-1 treatment
11.17.09 » CDC offers healthcare provider's toolkit on H1N1 and children with high-risk conditions
11.16.09 » People 50-65 with chronic health conditions at highest risk of death from swine flu -- not young children -- says WHO expert
11.10.09 » Sea glass jewelry sale to benefit Alpha-1 research
11.09.09 » More than 100 Alphas, family and supporters raise funds and awareness at first annual Alpha-1 Walk Miami
11.05.09 » Celebration of Vicki Joseph's life planned Nov. 14; playwright, attorney and Alpha-1 Foundation board member
11.03.09 » COPD Foundation launches "Big Fat Reference Guide on COPD" as part of November's COPD Awareness Month activities
11.02.09 » It's COPD and Alpha-1 Awareness Month; most people aware of COPD, but less than half understand that it can be treated
10.29.09 » Foundation launches video for Alpha-1 Awareness Month
10.29.09 » Foundation CEO John Walsh interviewed about Alpha-1, COPD, in Allergy & Asthma magazine
10.29.09 » National Institutes of Health Director Francis Collins is an Alpha-1 carrier, he tells conference on "personalized medicine"
10.29.09 » Canadian researchers find a clue to saving more donor lungs for transplant, possibly increasing lung transplant survival time
10.28.09 » GE and health insurer test plan to reward chronically ill patients who follow treatment plans
10.28.09 » Brazil approves Kamada augmentation therapy for Alpha-1
10.26.09 » Baxter announces room-temperature storage, anti-tampering features in Aralast NP
10.26.09 » Studies indicate smoking causes harsher health effects in women
10.26.09 » 11 hospitals join suit claiming CSL, Baxter price fixing
10.21.09 » Bill Reese publishes new book, "The Painter's Process"
10.19.09 » Talecris announces FDA approval of Prolastin-C, new concentrated version of Prolastin that cuts infusion time in half
10.14.09 » Alphas and their families should not take "flu mist" nasal spray, but get injected flu vaccines instead, warns Alpha-1 Foundation
10.14.09 » Talecris selling notes to pay off debt
10.13.09 » Foundation awards two grants to study Alpha-1 gene variations, infusion effects on the liver, with Talecris funding
10.12.09 » Kamada to begin advanced-phase clinical trials in Europe of inhalable Alpha-1 treatment
10.09.09 » Combined therapies for COPD reduce exacerbations, improve lung function, say German researchers
10.07.09 » Lack of health care reform will be very expensive, according to new study
10.07.09 » An Alpha and his neighbors worry about health care reform and their own problems with medical coverage
10.05.09 » Deadline extended for webinar on health care reform proposals and how they would affect people with chronic health conditions
10.02.09 » First Annual “Alpha-1 5k Walk Miami”
10.02.09 » Interim GINA rules issued to protect genetic information from being used to discriminate in health care insurance coverage
10.02.09 » Talecris shares rise on first day of trading
10.02.09 » Canadian Alpha gets double lung transplant
10.01.09 » Alpha-1 Foundation congratulates Talecris Biotherapeutics as shares begin trading for the first time on Nasdaq
10.01.09 » Talecris stock begins trading on Nasdaq
09.30.09 » Team Alpha-1 again "Escapes to the Cape" this weekend to promote awareness and raise funds for Alpha-1 research
09.24.09 » They Lost Their Hair - For a Good Cause
09.23.09 » How to save money on out-of-pocket health care costs
09.21.09 » Obama names respirator inventor Forrest Bird, NIH Director Francis Collins among winners of highest US government honor
09.21.09 » Group says promising health research being stifled, asks Senate panel to allow venture-capital-owned biotechs to bid for grants
09.17.09 » "The Vest" shows promise in COPD study
09.17.09 » FDA approves 4 vaccines for H1N1 (swine flu) virus
09.17.09 » New COPD drug disappoints in Alpha-1 patients
09.16.09 » Talecris launches public offering of 45 million shares
09.15.09 » More people will be eligible for extra help with Medicare prescription drug (Part D) plans in 2010
09.15.09 » Kamada presents study on inhaled AAT in cystic fibrosis at European Respiratory Society congress
09.14.09 » Are you ready to "Rock on for a Cure" Sept. 29?
09.12.09 » One dose of swine flu vaccine may provide protection
09.12.09 » Talecris offers stock in initial public offering
09.09.09 » Cystic Fibrosis patients with Alpha-1 gene more likely to develop liver disease, according to UNC study
09.07.09 » Action alert: Alpha-1 Foundation, Association support health care reform, suggest action to protect Alpha-1 care and therapies
09.04.09 » Jack "Coach" Walsh dies at 94; father of three Alphas, well-known patriarch of Alpha-1 community
09.03.09 » Texas billboard campaign aims to raise Alpha-1 awareness, detection
09.03.09 » FTC opposition to CSL-Talecris acquisition may have signaled tougher agency stance on US business mergers
09.02.09 » Sometimes, at-home medical test kits can save money
09.01.09 » COPD Foundation criticizes CMS proposed rule on pulmonary rehabilitation for Medicare patients
08.31.09 » New COPD pill "Daxas" improves lung function, lowers exacerbations in clinical trials, says medical journal
08.28.09 » Foundation to honor Gordon Snider, former American Thoracic Society president, Foundation Board member, for lifetime achievement
08.27.09 » 60 Minutes to re-broadcast interview with Forrest Bird, inventor of modern medical respirator, this Sunday
08.26.09 » Kamada signs distribution agreement for Alpha-1 infusion product
08.26.09 » Competing home oxygen factions propose a compromise on Medicare reimbursement rules for home oxygen use
08.25.09 » National Health Council blasts "misleading and distorted claims" on health care reform
08.24.09 » Avoiding infectious diseases, talking to families about Alpha-1, and research updates highlight Sept. 12 Boston Education Day
08.18.09 » What you need to know about the H1N1 (Swine Flu) virus
08.17.09 » New National Institutes of Health chief Collins wants to speed science into better health care, believes it can save money
08.14.09 » Talecris filings with SEC indicate possible public stock offering
08.13.09 » Spiriva combined with inhaled steroid, long-acting bronchodilator improves COPD survival in VA study
08.12.09 » Alpha Curtis Hamilton has nasty setback during recovery from liver transplant, with collapsed spinal vertabrae
08.11.09 » Victoria T. "Vicki" Joseph, attorney, playwright and newly-elected Alpha-1 Foundation board member, dies of lung transplant rejection
08.11.09 » Florida and Massachusetts researchers report progress in study of potential gene therapy for Alpha-1
08.05.09 » Alpha Karen Erickson tells about her diagnosis, terrifying prognosis, and how she got involved with the Alpha-1 community
08.05.09 » CHEST study questions inhaled steroids for COPD
07.29.09 » House bill drops access to "Medigap" coverage for disabled people under 65 on Medicare
07.28.09 » I hope you dance: the story of Kaitlin's wedding
07.28.09 » ATS Foundation video quotes patients, physicians, researchers on benefits of pulmonary research, education, training
07.23.09 » She'll climb the tallest peak in Idaho -- 12,662 feet -- to help raise awareness and funds for Alpha-1 research
07.23.09 » Alpha Pack hosts screening at Milwaukee "Liver Walk"
07.22.09 » CSL invites drawings for its holiday cards
07.20.09 » Talecris receives "Art of Industry Partnership Award" for work with Alpha-1 community, advancing understanding and treatment of genetic condition
07.20.09 » Free online training service helps disabled Alphas and others learn job skills for working at home on their computers
07.20.09 » Hospital sues CSL, Baxter, claiming price fixing on plasma products
07.16.09 » Alpha baby receives the gift of life
07.13.09 » Create your own sundae to help find a cure for Alpha-1
07.10.09 » CA teen competes in National Biking Championships to raise awareness, funds for Alpha-1 research
07.09.09 » Severe COPD raises risk of cognitive decline, inability to handle finances and medication
07.09.09 » Alpha-1 Foundation, COPD Foundation applaud Obama’s nomination of Collins, “a longtime friend of the Alpha-1 and COPD communities,” as new NIH director
07.08.09 » Ad Hoc Group for Medical Research applauds nomination of Collins as new director of National Institutes of Health
07.08.09 » Obama nominates Francis Collins, former head of National Human Genome Research Institute, to head National Institutes of Health
07.06.09 » Mississippi Alpha Curtis Hamilton receives liver transplant
07.01.09 » FDA experts propose reducing Tylenol dosage, taking painkillers Vicodin and Percocet off the market
07.01.09 » EPA proposes lower limits for short-term exposure to air pollutant nitrogen dioxide; American Thoracic Society urges even lower short-term limits
07.01.09 » A doctor remembers Charlie, an Alpha with liver disease
06.26.09 » Michael Jackson autopsy results could take weeks; singer reportedly had morphine injection before his death
06.26.09 » CHEST article reports that Alpha-1 research continues to provide lessons on COPD causes and potential treatments
06.26.09 » LA medical examiner conducts autopsy on Jackson; police plan further interviews with doctor who was present at his death
06.26.09 » Michael Jackson dies at 50, apparently of cardiac arrest; many health rumors circulate, include Alpha-1 lung disease
06.25.09 » New England Journal of Medicine article says Alpha-1 often unrecognized, makes clinical practice recommendations
06.24.09 » Workers with chronic illnesses fear for their jobs
06.23.09 » Apple CEO Steve Jobs gets liver transplant in Tennessee; columnist questions fairness of access to US health care
06.17.09 » Alpha-1 Foundation clinical director, AlphaNet coordinator to be interviewed on Sirius and XM satellite radio June 23
06.16.09 » New Medicare rules on home-oxygen payment causes complaints from suppliers, problems for some patients
06.16.09 » Protection for rare diseases included in Senate bill on "comparative effectiveness," healthcare reform legislation
06.15.09 » Senate passes bill giving FDA authority to regulate tobacco marketing, especially to minors
06.15.09 » Baxter, Novartis say they're ready with swine flu vaccine
06.12.09 » Talecris CEO plans to expand business after termination of acquisition deal with CSL
06.10.09 » Medical bills behind 60 percent of US bankruptcies
06.10.09 » Kamada reports inhaled AAT reduces inflammation in lungs of bronchiectasis patients
06.09.09 » Foundation expects Alpha-1 community support to be stable despite termination of merger agreement between CSL, Talecris
06.08.09 » Alphas learn to live longer, be healthier, and help to find a cure for Alpha-1 at national Alpha-1 conference
06.08.09 » CSL, Talecris agree to drop merger, citing cost, distraction of fighting lengthy battle with Federal Trade Commission
06.08.09 » CSL, Talecris press release on ending merger agreement
06.08.09 » FTC charges "tight oligopoly" in US plasma industry in court papers opposing CSL acquisition of Talecris
06.06.09 » Judge temporarily stays CSL acquisition of Talecris
06.04.09 » Alpha-1 Foundation announces Million Dollar Match program made possible by a grant from Talecris Biotherapeutics
06.02.09 » Alpha-1 Foundation announces $1M in research grants at annual ATS conference
06.02.09 » Patient organizations call for health care coverage for all, "curbing costs responsibly"
06.02.09 » Kamada seeks FDA license to market liquid Alpha-1 IV product
06.01.09 » CSL prepares case to battle FTC on Talecris acquisition
05.29.09 » Community unites to raise money for teen's liver transplant
05.29.09 » Talecris responds to FTC, defends acquisition by CSL as "pro-competitive"
05.29.09 » Columnist questions wisdom of FTC challenge to CSL's attempt to acquire Talecris Biotherapeutics
05.28.09 » Advair relabeled to warn of slight risk of bone fractures
05.28.09 » CSL announces it will oppose FTC in court challenge, reaffirms intent to acquire Talecris
05.28.09 » US Federal Trade Commission files injunction to halt CSL acquisition of Talecris Biotherapeutics
05.26.09 » Federal Trade Commission staff recommends blocking CSL purchase of Talecris; decision expected Thursday
05.22.09 » Older adults seem to have some immunity to swine flu
05.21.09 » New National Institutes of Health program will fund research for drugs to treat "rare and neglected diseases"
05.20.09 » Kamada presents studies on Alpha-1 augmentation therapy, inhaled AAT for cystic fibrosis, to American Thoracic Society
05.20.09 » Breathing Better Living Well Website features Alpha-1
05.20.09 » Alpha-1 Association national conference still scheduled for San Francisco June 5-7; swine flu advisory posted
05.20.09 » First Iberian Alpha-1 Congress to be celebrated in Spain Oct 17-18
05.19.09 » Talecris presents safety data, seeks FDA approval for concentrated form of Prolastin for IV augmentation
05.18.09 » COPD Foundation, WebMD launch "Lung Health Check"
05.18.09 » COPD Foundation, American Association for Respiratory Care launch seminars on COPD management for respiratory therapists
05.18.09 » Fremont pastor ready to return to ministry after liver transplant
05.15.09 » A great week for Alpha-1 research
05.11.09 » Kamada raising investment to fund clinical trial of AAT
05.07.09 » CDC reports 642 cases of swine flu in US, issues daily guidance for controlling spread of flu
05.07.09 » CSL: still no FTC decision on Talecris purchase
05.07.09 » Talecris wins patient compliance award
05.06.09 » Another Congressional bill seeks to eliminate two-year waiting period for Medicare coverage under Social Security Disability
05.06.09 » Minnesota Alpha makes her case for change in law to require health coverage of her condition
05.06.09 » Foundation urges Alpha community to submit comments to NIH on guidelines for embryonic stem cell research
05.06.09 » Doctor says Florida could save money on health care by making detection, treatment and management of chronic disease a key part of health care reform
05.05.09 » CLiC needs help with survey on liver disease
05.05.09 » Kamada to present AAT abstracts at American Thoracic Society
05.04.09 » $1 million matching grant announced at Celebration of Life
05.04.09 » More than 100 to walk acoss the bridge or through the park, at 2nd George Washington Bridge Walk this Saturday, May 9
04.30.09 » Action alert: Call your US senator to support $1 million for national COPD plan
04.30.09 » In Denver? Get the scoop on Alpha-1
04.30.09 » Journal reports Baylor, University of Florida researchers find genetic code change that causes rapid liver failure in Alpha-1 babies
04.28.09 » Double lung transplant increases survival time
04.28.09 » Foundation communications manager talks about his Alpha-1
04.28.09 » Swine flu: No cause for panic, but Alphas can take some precautions, says Alpha-1 Foundation clinical director
04.27.09 » 5 things to know about swine flu
04.27.09 » Obama: swine flu "not cause for alarm;" says his administration declared "public health emergency as a precaution"
04.27.09 » Alpha climbed up and down Arizona peak for 10 hours straight -- wearing his oxygen tank -- for Alpha-1 awareness, funds
04.27.09 » Indiana Alpha remains upbeat as she waits for her new lungs
04.27.09 » Pittsburgh Alpha-1 expert plans to make Children's Hospital one of the nation's top pediatric research centers
04.24.09 » Possible MN law change would require insurance companies to provide life-saving treatment to patients with rare diseases
04.24.09 » Advocates in Chicago Raising Awareness for Alpha-1 Testing
04.23.09 » Ireland's first lung transplant recipient is an Alpha
04.22.09 » Study reports "third-hand smoke" is a health hazard
04.22.09 » Alpha-1 Foundation CEO nominated for Biotech Humanitarian Award
04.21.09 » Fresh start gives Alpha a new outlook on life
04.20.09 » Two finish Boston Marathon despite COPD, asthma
04.20.09 » Researchers generally praise NIH draft guidelines on embryonic stem cell research; some concerned at continued limitations
04.16.09 » Better Business Bureau assures charitable donors with ad publicizing "Start With Trust," BBB Wise Giving Alliance standards
04.16.09 » Strike Out Alpha-1 at Bowling for Breath
04.10.09 » "Put Patients First" campaign seeks 3,000 signers in three weeks to petition Congress for better health care
04.10.09 » GOP leader urges change in Medicare home oxygen payments
04.08.09 » NIH website offers information on health research
04.07.09 » Pulmonary rehab, Medicare among topics at Jacksonville Education Day
04.07.09 » Sens. Crapo, Lincoln, send "Dear Colleague" letter asking $1 million for COPD prevention and treatment program
04.03.09 » Alpha plans to climb up and down Arizona peak for 10 hours straight -- wearing his oxygen tank -- for Alpha-1 awareness, funds
04.03.09 » Sifers wins Baylor Faculty Excellence Award
04.02.09 » New study shows pulmonary rehab improves exercise tolerance, quality of life for COPD patients
04.01.09 » Some tips for saving money on medical care in tough economic times
03.30.09 » Patient advocacy groups push to eliminate two-year-wait for disabled to receive Medicare benefits
03.26.09 » People with breathing problems also have problems with swallowing, University of Pittsburgh researchers report
03.25.09 » Millions postpone care for chronic health conditions, poll finds
03.25.09 » Boyer family knows all too well about liver disease and Alpha-1
03.23.09 » Alpha-1 Foundation president to co-chair session at First World Conference of COPD Patients in Rome
03.23.09 » Duke researchers report new genetic link to COPD
03.20.09 » Boston University researchers suspect gene linked to COPD
03.20.09 » COPDGene study recruits 3,000th subject for huge national study of genetic factors in lung disease
03.20.09 » Genetic Alliance proposes funding for health information technology, huge national "cohort study"
03.18.09 » More than 50,000 screened for Alpha-1 in Baxter program
03.18.09 » Mother struggles financially, emotionally with daughter's Alpha-1 liver disease
03.18.09 » Kamada completes step in study of inhaled AAT with bronchiectasis patients
03.18.09 » Alphas, others to testify for Minnesota bill assuring care for patients requiring plasma protein therapies
03.17.09 » Celebrating St Pat's and contributing to Alpha-1 research at the Celtic Connection
03.16.09 » National Education Conference in San Francisco June 5-7
03.13.09 » Building a Diverse Scientific Workforce
03.12.09 » Website keeps family hopeful during daughters’ struggle with Alpha-1 Liver disease
03.12.09 » Living well with liver disease program in Needham, MA
03.11.09 » Talecris Biotherapeutics honored with "Art of Industry Partnership Award" for years of work with Alpha-1 community
03.10.09 » Helium-oxygen mixture helps COPD patients exercise harder
03.09.09 » Obama overturns Bush policy limiting NIH spending on embryonic stem cell research
03.09.09 » Flying can worsen breathing symptoms for those with COPD
03.06.09 » Alpha-1 Foundation Promotes "Get Tested" Video
03.06.09 » Complaints about home oxygen service? COPD Foundation Information Line invites calls from COPD patients
03.03.09 » New COBRA aid in economic stimulus package
03.03.09 » FDA approves Symbicort for COPD treatment
03.03.09 » Texas toddler tops the transplant list
03.03.09 » AlphaNet contributions to Alpha-1 Foundation top $25 million
03.02.09 » Patient Safety Coalition urges FDA to create "Unique Device Identification" to speed, track recalls of defective medical devices
02.27.09 » Questions and Answers on Genetic Information Nondiscrimination Act
02.27.09 » Even occasional smoking is risky, expert says
02.27.09 » Join the Celtic Connection and help raise money for Alpha-1
02.27.09 » Rare diseases: Not a rare health issue
02.26.09 » Health insurer agrees to pay for portable oxygen concentrator after appeal by Alpha-1 Foundation board member
02.26.09 » First "Rare Disease Day" is Saturday, Feb. 28
02.24.09 » High Vitamin D level protects against colds, study finds
02.24.09 » AlphaNet's Alpha-1 Disease Management and Prevention Program improves outcomes, says study reported in COPD journal
02.23.09 » Scientists await Obama reversal of ban on embryonic stem cell research
02.23.09 » Congressional letter urges Obama to take "swift action" to lift restrictions on embryonic stem cell research
02.20.09 » Lifetime Health Insurance Caps Bill Introduced in House, Senate; Alpha-1 Foundation, Association urge action to support bill
02.20.09 » Exacerbations of COPD make patients more likely to get sick again, British researchers report
02.20.09 » CSL says regulatory review of Talecris purchase is "on track"
02.18.09 » The Alpha-1 Holiday Wish List: Touching, Inspiring
02.12.09 » Chicago Alpha receives lung transplant, renews life as grandmother, caregiver and support group leader
02.06.09 » Study on low-cost treatment for COPD wins medical journal's "People's Choice Paper of the Year" award
02.05.09 » FDA, Alpha-1 Foundation and Office of Public Health plan workshop on measuring efficacy of alpha-1 augmentation
02.03.09 » Genetic Alliance invites films for "Gene Screen" at conference
02.03.09 » TX scientists prepare stem cell research to take advantage of restrictions being loosened
02.02.09 » NC firm testing inhaled COPD therapy, gets NHLBI grant
02.02.09 » Misfolded alpha-1 protein may be key to preeclampsia in pregnant women, Yale researchers report
01.29.09 » Alpha-1 Foundation backs MN bill ensuring access to plasma protein therapies for Alpha-1 Antitrypsin Deficiency, other health conditions
01.27.09 » CA biotech firm plans first study with human embryonic stem cells
01.26.09 » Villages COPD support group raises funds for lung disease research
01.26.09 » Acute Respiratory Distress Syndrome as deadly as ever
01.22.09 » Save the date: Celebration of Life coming May 1
01.20.09 » Alpha-1 Antitrypsin Deficiency featured on About.com
01.20.09 » New Zealand activist, lung transplant recipient dies
01.14.09 » Alpha docs named to scientific advisory board of Arriva, company now testing inhaled version of recombinant AAT
01.09.09 » Drug protects mice from cigarette smoke
01.08.09 » Join the party - Take on the Celtic Challenge
01.08.09 » Did you participate in our Alpha-1 Lottery for a Cure?
12.29.08 » Michael Jackson Alpha-1 reports lead to interviews with Alpha-1 doctors explaining the condition to a wider audience
12.23.08 » Alpha-1 Lottery for a Cure
12.23.08 » Jackson spokesman calls Alpha-1 claim "total fabrication"
12.22.08 » Pop star Michael Jackson's biographer claims he has Alpha-1 and is in desperate need of a lung transplant
12.16.08 » Kamada enrolls trial for inhaled AAT in bronchiectasis
12.08.08 » Boston University School of Medicine receives $2.9 million grant for COPD study
12.08.08 » FDA panel rejects new airway valve device as a substitute for lung volume-reduction surgery
12.04.08 » What's on your Alpha-1 holiday wish list?
12.04.08 » Health and wellness TV series features Alpha-1
12.02.08 » Alpha-1 Foundation shows "Howl-i-Day" spirit at the Brunch for the Animals
12.01.08 » Marine Hero, John W. Ripley, dies at 69
12.01.08 » From sick boy to lively toddler
11.25.08 » US COPD Coalition commends federal action to improve lives of millions of Americans with lung disease
11.21.08 » Long-term erythromycin reduces COPD exacerbations in study
11.20.08 » COPD Awareness campaign comes to Facebook
11.20.08 » It's annual open enrollment time for Medicare drug plans
11.18.08 » Foundation, Talecris announce two research grant awards
11.17.08 » ATS annual conference May 15-20 in San Diego
11.14.08 » Memorial service scheduled for Dr. David Pogue, TX Alpha
11.13.08 » NYC Alpha-1 Swim Team member's law firm receives "Pro Bono" Award
11.13.08 » Survey finds growing awareness of COPD, nation’s 4th Leading killer
11.12.08 » French biotech firm invests in GTC, developer of recombinant AAT
11.11.08 » Kamada signs long-term supply agreement for AAT raw material
11.06.08 » The holiday tree with a taste of Florida tropics
11.05.08 » Court blocks Medicare attempt to pay only for least expensive treatment
11.05.08 » Oxygen providers call new Medicare rules “wholly inadequate”
11.05.08 » Foundation joins in effort to increase NIH research funding
11.03.08 » Article in magazine for respiratory therapists puts spotlight on Alpha-1, and major role RTs can play in improving detection
10.31.08 » Airline's treatment of oxygen user draws complaint letter to FAA
10.31.08 » Foundation's Ethical Issues Working Group article examines role in responsible patient advocacy
10.30.08 » Combo inhaled product shows effectiveness in COPD
10.29.08 » The picture story of Sophia and her family
10.27.08 » Social Security announces "Compassionate Allowances," fast-tracking disability applications for 50 rare diseases
10.27.08 » Foundation President John Walsh one of six appointed to National Institutes of Health Council of Public Representatives
10.27.08 » Kamada says final analysis confirms safety, efficacy of IV product
10.23.08 » Alpha pilot helps in relay rescue of canine family
10.23.08 » Introducing “Learn about COPD Days” Nov. 13-16.
10.21.08 » Alpha-1 protein reverses Type 1 diabetes in mouse studies, raises hope for breakthrough in human diabetes
10.21.08 » As economy continues to worsen, more people are qualifying for drug-assistance programs to get prescription drugs
10.21.08 » PA transplant patients grateful for organ donations
10.17.08 » 1st Florida COPD Summit scheduled in Orlando Nov. 7; aims for statewide COPD Coalition to combat increasing lung disease
10.16.08 » Grueling heat is no match for a father running for a cause
10.15.08 » Current albuterol inhalers to be gone Dec. 31, replaced by non-polluting inhalers that taste and feel different in the mouth
10.15.08 » Medicare Part D's scary "Doughnut Hole"
10.14.08 » Women's Health Expo will offer Alpha-1 screening
10.13.08 » Foundation, Baxter announce grant to study African-Americans for Alpha-1, genetic links to illness, death from COPD
10.13.08 » Kamada reports inhaled AAT reduced Cystic Fibrosis inflammation
10.13.08 » Alpha talks about his health condition at Scotland conference
10.10.08 » Family has two children with Alpha-1 liver disease, faces financial disaster
10.10.08 » Foundation advisory committee CHEST editorial recommends avoiding augmentation therapy for Alpha-1 "carriers"
10.09.08 » CDC announces Flu Vaccination Week
10.08.08 » Foundation honors New York City Alpha-1 Swim Team
10.07.08 » "Not a serious runner," but a dad with a cause.
10.06.08 » Spiriva study shows improvements in lung function over four years of UPLIFT study, Boehringer-Ingelheim reports
10.06.08 » COPD Foundation issues caution against "over-reacting" to study on Spiriva safety
09.30.08 » Experts at Newborn Screening Workshop recommend pilot studies on Alpha-1 screening; suggest lifetime benefits as “new paradigm”
09.25.08 » Study authors recommend COPD patients be screened for diabetes, cardiovascular disease and high blood pressure
09.24.08 » NIH director Zerhouni announces resignation
09.24.08 » Foundation to recognize NYC Alpha-1 Swim Team members
09.24.08 » Talecris shows patients manufacturing process at Clayton, NC, plant
09.23.08 » Alpha-1 Canada newsletter takes you into the life of an Alpha
09.19.08 » Team Alpha-1 takes Cape Cod by storm
09.19.08 » New website provides information on donating blood plasma
09.19.08 » WI Alpha to attend World Stem Cell Summit
09.18.08 » Texas Rangers stars headline “Shoot for the Cure” golf tournament Oct. 6
09.16.08 » Patient groups new power brokers in drug development
09.15.08 » Senate passes amended Disabilities Act to restore protections; Health Council calls vote "resounding victory for all with chronic conditions"
09.12.08 » "The Sweeper" is always ready for Escape to the Cape
09.12.08 » MA Alpha anxiously waits for a lung transplant
09.09.08 » NYC Alpha-1 Swim Team tops fundraising goal
09.09.08 » You can walk or run for Alpha-1 in Miami Sept 21
09.08.08 » BP employees take on a company challenge to donate $500 -- and they choose to sponsor Alpha-1 Foundation research programs
09.05.08 » Actor Scott Baio keynotes National Newborn Screening Awareness Month kickoff
09.04.08 » World Stem Cell Summit Sept. 22-23 in Wisconsin
09.04.08 » Foundation schedules workshop on newborn screening for Alpha-1 after Genetic Information Nondiscrimination Act takes effect
09.02.08 » 12-year-old Michigan Alpha wins swimming medal at Transplant Games
09.02.08 » ATS Pubic Advisory Roundtable newsletter features "Escape to the Cape"
08.29.08 » Idaho Alpha-1 Education Day planned for Oct. 4.
08.27.08 » Study concludes Alpha-1 testing needed in Fibromyalgia patients
08.26.08 » NYC Alpha-1 Swim Team's English Channel crossing wasn't easy; swim had to be completed at night in chilling 3-4 foot waves
08.26.08 » One Missouri twin's Alpha gene made a big difference
08.25.08 » The story of "An Alpha Family" helps promote Alpha-1
08.25.08 » NYC Alpha-1 Swim team recognized by Long Island newspaper
08.25.08 » Len Geiger continues to touch lives as a patient advocate
08.21.08 » Kamada completes safety phase of inhaled alpha-1 protein for Cystic Fibrosis
08.21.08 » British newspaper features Alpha-1 swim team
08.20.08 » Team Alpha-1 plans its annual autumn "Escape to the Cape" bike trek to raise money for Alpha-1 research
08.20.08 » NYC Alpha-1 Swim Team's Channel crossing gets UK publicity
08.15.08 » FL COPD Summit aims for statewide action on lung disease
08.15.08 » European Alpha-1 study finds Prolastin slows emphysema
08.14.08 » Kamada announces further investment
08.14.08 » WV Respiratory Rally offers free Alpha-1 testing Sept 6
08.13.08 » Alpha-1 Foundation says CSL's acquisition of Talecris can bring expanded research and services -- with input from Alpha-1 community
08.13.08 » Talecris announces acquisition agreement with CSL
08.13.08 » CSL agrees to acquire Talecris Biotherapeutics
08.13.08 » Jennifer's mission: swim, bike, run for Alpha-1
08.11.08 » US grants $49 million to states for expanded health care coverage
08.08.08 » Action sought on denial of liquid oxygen to Medicare patients
08.07.08 » Michigan Alpha Theresa Snyder takes home gold at Transplant Games
08.07.08 » SD County Commissioner thriving after lung transplant
08.06.08 » Las Vegas Regional Support Group Meeting Sept. 27
08.06.08 » Conference will examine link between genetics, disease
08.06.08 » Swedish study finds low mortality in non-smoking Alphas
08.04.08 » Alpha-1 Education Day in Raleigh, NC, Sept. 20
08.04.08 » Regional Support Group Meeting in NH Aug. 16
07.25.08 » Taking to the sky for Alpha-1 awareness
07.25.08 » Talecris inhaled Alpha-1 treatment gets European orphan drug status
07.24.08 » Congressional bills would raise health insurance lifetime caps; Alpha-1 Foundation, Association issue Action Alert on bills
07.24.08 » Alpha-1 Foundation seeking investigators for innovative research projects to promote faster, more efficient detection of Alpha-1
07.21.08 » Colorado resident’s recent Alpha-1 diagnosis forces her to move to Florida
07.18.08 » Two team up to promote Alpha-1 and cancer awareness
07.18.08 » Massachusetts harbor cruise for Alpha-1
07.16.08 » Congress Overrides Bush Veto on Medicare; Package Includes Pulmonary Rehab, Doctor Payments, Oxygen Rule Repeal
07.14.08 » Young Kansas Alpha among competitors in Transplant Games
07.12.08 » Trine laughs, cries with family of child whose liver saved her life
07.11.08 » Trine Engebretsen Meets the Family of Child Who Donated Her Life-Saving Liver
07.11.08 » They'll swim the English Channel -- and while they're at it, they'll raise funds for Alpha-1 research
07.10.08 » MN Alpha Gets 2nd Chance at Life from Living Donor Liver Transplant
07.10.08 » Senate Approves Medicare Package Including Pulmonary Rehab Coverage as Ailing Massachusetts Sen. Kennedy Returns for Vote
07.09.08 » Maryland Firefighter Raising Funds for Brother's Lung Transplant
07.08.08 » Alpha Liver Transplant Recipient Trine Egebretson Will Finally Meet the Family of Child Who Donated Her Liver
07.07.08 » Team Alpha-1, Including Three "Carriers," to Compete at US Transplant Games in Pittsburgh This Week
07.07.08 » John S. "Jack" Reid named to Foundation Board
07.03.08 » They're Losing Their Hair -- For a Good Cause
07.02.08 » Senate Rejects Medicare Package Amid Partisan Debate; COPD Caucus Co-Chair Crapo Explains Vote Against Bill
07.01.08 » Amy Winehouse, 24, Probably Too Young to Have Emphysema, Pulmonologist Says
06.26.08 » CSL Behring Advocacy Grants Include Alpha-1 Foundation
06.26.08 » NE Journal of Medicine Outlines Limits of GINA
06.26.08 » English Pop Star Amy Winehouse, Just 24, May Have COPD
06.24.08 » House Passes Medicare Package, Senate Action Needed
06.22.08 » Deford Keynotes Alpha-1 Association National Conference; Researchers Outline Potential Breakthroughs in Lung, Liver Disease
06.16.08 » NY Fire Department Medical Officer Honored at 'Breath of Life'
06.13.08 » Action Needed to get Pulmonary Rehab as Medicare Benefit
06.12.08 » Allergy and Asthma Network Seeks Awareness Campaign, Help for Transition to New Albuterol Inhalers
06.11.08 » Patients Prefer Convenience of Infusions at Home
06.10.08 » Free Patient Notification System Available for Notice of Any Plasma-Product Recalls or Withdrawals from the Market
06.05.08 » Keny Hoskins, Managed FL Tattoo, Body-Piercing Businesses
06.05.08 » DOT Holds Public Forum on New Rule Requiring Airlines to Accept Carry-On Portable Oxygen Concentrators Aboard Flights
06.04.08 » Anglers, Golfers Compete to Raise Funds for Alpha-1 Research
06.03.08 » Alpha-1 Foundation Website Now Available in Spanish, German
06.03.08 » Newspaper Highlights Challenge of Living With Lung Disease
06.02.08 » Foundation Scientific, Clinical Directors Question Study on Lung Cancer Linked to Alpha-1; 'Not a Cause for Undue Worry'
05.29.08 » National Human Genome Research Leader Collins Stepping Down
05.28.08 » Denver AlphaBeaters "Get the Scoop on Alpha-1"
05.27.08 » Article on Genetic Discrimination Quotes South Carolina Alpha, Alpha Doc Charlie Strange, and AlphaNet Coordinator
05.27.08 » Alphas May Have Increased Risk of Lung Cancer
05.22.08 » Lagasse Dinner Creates Buzz on the Beach, Says Herald
05.22.08 » GINA Lightens Fears of Genetic Discrimination, say Alpha, Foundation Clinical Director, in Denver Post Article
05.21.08 » Bush Signs Bill Outlawing Genetic Discrimination
05.21.08 » Foundation, Association Celebrate GINA Signing; Foundation Planning Workshop to Discuss GINA Implications and Opportunities
05.20.08 » Emeril Lagasse Honors Late Friend John E. Kushner
05.20.08 » Alpha-1, COPD Foundations Sponsor Workshop on Standardizing CT Scans for COPD Research
05.16.08 » Sens. Crapo, Lincoln Celebrate Airline Oxygen Ruling
05.16.08 » Alpha Trine Engebretsen, First Florida Liver Transplant Recipient, Talks About Miami Herald's Silver Knight Award
05.15.08 » Web Database Gathers Worldwide Alpha-1 Research
05.15.08 » Welcome Home, Hap & Diane!
05.15.08 » Biking Duo Makes Local News in WV
05.12.08 » Emeril Lagasse hosts Alpha-1 Dinner to Honor Kushner
05.09.08 » AARC Says Patients Win in New Airline Ruling
05.07.08 » Foundations Cheer Victory as DOT Mandates That Airlines Must Accept Carry-On Portable Oxygen Concentrators Aboard Flights
05.06.08 » Foundation's Celebration of Life Had the Beat to Beat Alpha-1 -- to the Tune of $300 Thousand for Alpha-1 Research
05.05.08 » Alpha-1 Mother's Day Campaign
05.02.08 » Gary Bain Dies at 68; Pioneer in COPD Patient Advocacy
05.01.08 » Anti-genetic Discrimination Bill Approved
04.30.08 » St. Luke’s–Roosevelt Hospital Supports the Alpha-1 Foundation in First Annual George Washington Bridge Walk For Lung Disease
04.30.08 » Centric, Talecris Biotherapeutics Sponsor 8th annual Celebration of Life Event: “We Got the Beat to Beat Alpha-1”
04.29.08 » Long-time Friend Offers Liver Donation to RI Alpha
04.28.08 » KY Mother Thrilled at Genetic Protection Law
04.24.08 » GINA Passes Senate After 13-year Battle
04.23.08 » Mobile Spirometry Unit at Miami Health Expo
04.22.08 » Loyola Transplant Expert to Discuss End-stage Lung Disease at Chicago Education Day April 26
04.21.08 » FL Smokers May Be Eligible for $30,000 Check
04.17.08 » Alpha-1 Testing at Illinois Respiratory Rally
04.16.08 » Swedish Study Finds Family Linkage in COPD Hospitalizations
04.16.08 » Final Senate Vote on GINA May be Imminent
04.14.08 » "We Got the Beat to Beat Alpha-1" Event Kicks Off
04.14.08 » Miss New Jersey Contestant Chooses Alpha-1
04.11.08 » NYC Man Runs Boston Marathon for Priest Who Got Transplant for Alpha-1 Liver Disease
04.09.08 » Talecris Gives Free Tour of Manufacturing Plant
04.08.08 » Kamada gets Orphan Drug designation for AAT in Bronchiectasis
04.07.08 » Flotte, New UMass Center Director Lead Gene Therapy Research Effort
04.04.08 » OK Alpha Featured in NYU Article on Genetic Discrimination
04.04.08 » FDA Identifies Contaminant Found in Recalled Heparin
04.03.08 » Eatons Hit 9,000 Miles!
04.02.08 » Alpha to be Featured in Pulmonary Rehab Talk at Thoracic Society’s Public Advisory Roundtable Forum in Toronto
04.02.08 » Alpha-1 and COPD Foundations Sponsor Workshop on Standardizing CT Scans for COPD
04.02.08 » Kamada Meets "Primary Endpoint" in AAT Phase III Trial
03.27.08 » PA Alpha Prepares for Second Double-lung Transplant
03.26.08 » Biking Duo Gets Media Coverage in NC
03.24.08 » FDA Investigates Possible Spiriva Stroke Risk
03.21.08 » Foundation CEO Walsh featured in ATS PAR News
03.17.08 » Knoxville Named Worst in U.S. for People with Asthma
03.14.08 » IAPO Discusses Patient Leadership in Worldwide Healthcare
03.12.08 » Alpha-1 Craftsman Outlived Doctors' Expectations
03.11.08 » Have you seen our Alpha Goodies?
03.10.08 » ATS Newsletter Spotlights Len Geiger
03.10.08 » AARC Times Outlines Role of Respiratory Therapists and Detecting Alpha-1 in COPD Patients
03.06.08 » Alpha-1 Protein Helps 'Cure' Diabetes in Mice
03.06.08 » Bill Would Add Respiratory Therapy Services to Medicare
02.29.08 » Foundations Push Medicare to Provide Pulmonary Rehab
02.29.08 » US Rep. Ros-Lehtinen Named as Co-Chair of Congressional Caucus for Organ and Tissue Donation
02.28.08 » Biking Duo Visits Foundation in Miami
02.26.08 » Kamada Partners with Nebulizer Company on Inhaled AAT
02.26.08 » NY Times: Insurance Fears Cause Many to Avoid DNA Test
02.22.08 » Few Understand COPD, Survey Finds
02.21.08 » Talecris Celebrates 20 years of Prolastin
02.20.08 » You Can Help End Genetic Discrimination
02.19.08 » Brantly to Discuss Early Detection at AZ Ed Day
02.12.08 » Interest Grows in Genetics of COPD
02.12.08 » Prolastin Web Site Wins Second National Award
02.12.08 » MA Alpha's "Donna Reed" Life on Hold, Awaiting Transplant
02.11.08 » Kamada Tests Inhaled Alpha-1 Protein for Bronchiectasis
02.11.08 » Foundation CEO Featured on Cover of AARC Times
02.11.08 » Foundation Honors Service, Contributions
02.07.08 » FL Alpha wins battle for VA transplant evaluation
01.23.08 » VA Legislators Attempt to Ban Restaurant Smoking
01.21.08 » Shailer Handyside, Oldest Member of Alpha-1 Research Registry, Dies at 89
01.14.08 » Study Finds Flu Shots Did Not Affect Alpha-1 Exacerbations
01.14.08 » Biking Duo Catches Eye of TX Newspaper
01.07.08 » Value of Gene Testing Kits Challenged
01.03.08 » Foundation President: Industry Must Go to Bat for Patients
01.03.08 » Study Finds More Alphas than Expected in Germany
01.03.08 » HBO Real Sports: Geiger's Story Available on YouTube
01.03.08 » Campaign Draws Over 5,000 Organ Donors in UK
01.03.08 » ABC News Features Story on Alpha-1 Transplant
01.02.08 » Alpha, "Baywatch" Alum Featured in Article Disputing Myths
01.02.08 » Disputing Common Myths of COPD
01.02.08 » "Breathing Better, Living Well" Blogging about COPD
12.27.07 » Indiana Alpha Desperate for Liver Transplant
12.13.07 » Alpha Expresses Concerns After Hospital Terminates Infusion
12.13.07 » Home Oxygen Providers Cut Service to Maintain Profits
12.10.07 » National Jewish Publicizes A-1 Foundation-AARC Study
12.07.07 » Biking Duo, Alpha-1 Featured on Arizona TV News
12.05.07 » Alpha-1 Foundation, AARC Cooperate on Landmark PFT Study; 5,000 COPD Patients will be Tested for Alpha-1
12.04.07 » Transplant Recipients in New Zealand Walk for Thanks
11.29.07 » Alpha-1 Foundation Applauds NY Times Story on COPD
11.29.07 » After a Short Break, the Eatons are Back Outbikin!
11.29.07 » NY Times: COPD Research Focuses on Genes, Inflammation
11.29.07 » Pharmaceutical Company Grant Supports COPD Campaign
11.28.07 » Free Lung Tests at AARC Orlando Conference Dec. 3
11.26.07 » Regional Support Group Meeting in Orlando Dec. 1
11.26.07 » SC Town Meeting Focuses on Health Care
11.26.07 » Breakthrough: Human Skin Used to Mimic Stem Cells
11.20.07 » HBO Features Touching Alpha-1 Story
11.20.07 » Michigan Alpha-1 Infant Awaits Liver Transplant
11.19.07 » Study Probes Why Some Alphas Get Liver Disease
11.19.07 » FDA Approves Nexavar for Liver Cancer Treatment
11.19.07 » Physical Therapy Improves Quality of Life in COPD Patients
11.15.07 » Today is World COPD Day
11.15.07 » Study Finds Alpha-1 in 3.3% of Asthma, COPD Patients
11.14.07 » Prolastin.com Named Top Biotech Site of 2007
11.08.07 » Miami Health Alert: Beware of MRSA Infection
11.06.07 » Another Alpha Breathes Easy Thanks to Organ Donation
11.01.07 » Singer Robert Goulet Dies Awaiting Transplant
10.30.07 » Florida Alpha Leads Life of Advocacy
10.29.07 » Geiger Completes Race with Lung Donor Family
10.24.07 » ASIA: Highest Percentage of COPD Found in Vietnam
10.22.07 » COPD/Alpha-1 Education Day Oct. 27 in NYC
10.22.07 » Kamada Submits Aerosolized AAT Program to FDA
10.22.07 » COPD Foundation President to Give Keynote Address at 53rd Annual Respiratory Congress of the AARC
10.19.07 » Keep "Breathing Better" and "Living Well"
10.17.07 » Education For COPD Patients Cuts Hospital Admissions
10.16.07 » Alpha Advocate Defies Weather, Completes Ironman
10.16.07 » Most Disabled Have Access to Medigap Insurance, Study Finds
10.12.07 » Geiger Featured in Jacksonville Newspaper
10.10.07 » National Jewish, Brigham and Women's hospitals Awarded NHLBI Grant of $37 Million for COPD Research
10.08.07 » Update: New Dad Receives Successful Liver Transplant
10.05.07 » Focus Groups on Ethics of Testing Children for Alpha-1
10.05.07 » COPD Caucus Urges Public Health Action Plan
10.03.07 » New Compounds "First Step to a Cure"
10.01.07 » New Dad Awaits Liver Transplant
09.28.07 » Tuesday is "National FDA Tobacco Legislation Call-in Day"